Pain Related Organizations
This page is consists of a listing of both US and international organizations related to chronic pain and pain related conditions. Please use the Contact Us form to notify us if any link do not work or has changed, but more importantly, if you know of any other organizations not listed here please send an email to info@strivingtothriving.com. We want to keep this list as current as possible so it can serve as a resource to those in need.
988 has been designated as the new three-digit dialing code that will route callers to the National Suicide Prevention Lifeline (now known as the 988 Suicide & Crisis Lifeline), and is now active across the United States.
When people call, text, or chat 988, they will be connected to trained counselors that are part of the existing Lifeline network. These trained counselors will listen, understand how their problems are affecting them, provide support, and connect them to resources if necessary. For needed help now, go to https://988lifeline.org/talk-to-someone-now/
The Alliance of State Pain Initiatives (ASPI) is a network of state-based Pain Initiative organizations that work to remove the barriers that impede pain relief through education, advocacy and institutional improvement. www.aspmn.org
The American Academy of Hospice and Palliative Medicine is the professional organization for physicians specializing in hospice and palliative medicine. Membership is also open to nurses and other healthcare providers who are committed to improving the quality of life of patients and families facing life-threatening or serious conditions. www.aahpm.org
The American Academy of Orofacial Pain, an organization of health care professionals, is dedicated to alleviating pain and suffering through the promotion of excellence in education, research and patient care in the field of orofacial pain and associated disorders. www.aaop.org
The American Academy of Pain Management is an inclusive, interdisciplinary organization serving clinicians who treat people with pain through education, setting standards of care, and advocacy. www.aapainmanage.org
The American Academy of Pain Medicine (AAPM) is the medical specialty society representing physicians practicing in the field of Pain Medicine. As a medical specialty society, the Academy is involved in education, training, advocacy, and research in the specialty of Pain Medicine. www.painmed.org
The American Board of Pain Medicine (ABPM) is committed to the certification of qualified physicians in the field of Pain Medicine. www.abpm.org
The mission of the American Chronic Pain Association is to facilitate peer support and education for individuals with chronic pain and their families so that these individuals may live more fully in spite of their pain, and to raise awareness among the health care community, policy makers, and the public at large about issues of living with chronic pain. www.theacpa.org
The American Migraine Foundation (AMF) is a non-profit organization dedicated to the advancement of research and awareness surrounding migraine, a disabling condition that impacts more than 39 million men, women and children in the United States. The AMF was founded in 2010 to provide global access to information and resources for individuals with migraine as well as their family and friends. www.americanmigrainefoundation.org.Working alongside the American Headache Society, the AMF mission is to mobilize a community for patient support and advocacy, as well as drive and support impactful research that translates into treatment advances for patients with migraine and other disabling diseases that cause severe head pain.
Founded in 1905, the American Society of Anesthesiologists is an educational, research and scientific association with 43,000 members organized to raise and maintain the standards of the medical practice of anesthesiology and improve the care of the patient. www.asahq.org
The American Society of Peri-Anesthesia Nurses (ASPAN) is the professional specialty nursing organization representing the interests of more than 55,000 nurses practicing in all phases of pre-anesthesia and post-anesthesia care, ambulatory surgery, and pain management. www.aspan.org
The American Society of Regional Anesthesia and Pain Medicine is the premier organization that addresses the clinical and professional educational needs of physicians and scientists; assures excellence in patient care utilizing regional anesthesia and pain medicine; and investigates the scientific basis of the specialty. www.asra.com
Primary objectives of Association of Anesthetists of Great Britain and Ireland include education, promotion of research, annual grants, maintaining standards, and publishing of guidelines. www.aagbi.org
The Arthritis Foundation is a resource for helping you live your best life by creating a powerful network of support through shared experiences, empowering information and meaningful connections. Online or in person, they work to promote life-changing resources and research, to push for change and to create community. www.arthritis.org
The Australian Pain Management Association Inc. (APMA) is a health charity which was established in 2009 because there weren’t any community services for the more than 3.2 million Australians living with pain. APMA is the consumer health organization for all Australians who live with pain. www.painmanagement.org.au
The Australian Pain Society is a multidisciplinary organization aiming to relieve pain and related suffering through advocacy and leadership in clinical practice, education and research. www.apsoc.org.au/
Formed in 1934, the Australian Society of Anesthetists is a not-for-profit member funded organization dedicated to supporting and connecting Australian anesthetists. We work with and for our members to ensure the high standards of the profession. We primarily focus on the economic, workforce and professional interests of our members. http://www.asa.org.au/
The British Pain Society is the largest multidisciplinary professional organization in the field of pain within the UK. Membership comprises medical pain specialists, nurses, physiotherapists, scientists, psychologists, psychiatrists, general practitioners, occupational therapists and other healthcare professionals actively engaged in the diagnosis and treatment of pain and in pain research for the benefit of patients. www.britishpainsociety.org
The Canadian Anesthesiologists’ Society is dedicated to the advancement of the medical practice of anesthesia through research, education and excellence in patient care. www.cas.ca
Canadian Pain Society is a society of scientists and health professionals who have a vested interest in pain research and management. As a chapter of the IASP, the CPS supports the treatment of pain as a basic human right and is currently advocating for a Canadian National Pain Strategy. www.canadianpainsociety.ca
The Canadian Academy of Pain Management is dedicated to promoting excellence of care for pain sufferers; through comprehensive professional development for professionals who care for pain sufferers; in a context of interdisciplinary collaboration; and through adherence to the core professional attitudes and acquisition of knowledge essential for caring for pain sufferers. www.canadianapm.com
The Center for Disease Control and Prevention (CDC) is the U.S. government agency for overseeing and tracking information on diseases, health and wellness. The CDC has extensive data and statistics available on the environment, travel, workplace safety and health and many more. www.cdc.gov
The Centre for Pediatric Pain Research is an international leader in children’s pain research. The interdisciplinary research conducted by the faculty, students, and staff tackles many facets of children’s acute and chronic pain. They are committed to conducting high-quality research on how to better understand, assess, and manage children’s pain and translating this research into improved practice. www.pediatric-pain.ca
The Chronic Pain Association of Canada is Canada’s largest independent, not-for-profit charitable organization serving people affected by pain, through education, information, support advocacy. www.chronicpaincanada.com
The purpose of the City of Hope Pain and Palliative Care Professional Resource Center is to serve as a clearinghouse to disseminate information and resources to assist others in improving the quality of pain management and end of life care. http://prc.coh.org
European Society of Anesthesiology aims for the highest standards of practice and safety in anesthesia, peri-operative medicine, intensive care, emergency medicine and pain treatment through education, research and professional development throughout Europe. www.esaic.org
The Facial Pain Association (FPA) formerly known as the Trigeminal Neuralgia Association (TNA), a non-profit, 501(c)(3) volunteer organization, founded in 1990 by a team of people who were profoundly grateful for recovery from years of disabling trigeminal neuralgia pain. The organization now assists thousands of others around the world. FPA has emerged as the world’s leading resource for information and health care guidance for all people suffering from neuropathic facial pain. Patients, their loved ones and healthcare professionals benefit from its programs of education, personal support, and advocacy efforts. https://fpa-support.org
Fibromyalgia – International Myopain Society brings together an international community of health care professionals, researchers, educators, and others to improve care and transform delivery of treatment to those suffering from soft tissue pain through the promotion and exchange of globally recognized research, education, and innovation in patient care. www.myopain.org
The Institute for the Study and Treatment of Pain is a non-profit organization dedicated to research, treatment, training, and education in chronic pain. www.istop.org
The International Association for Hospice & Palliative Care mission is to collaborate and work to improve the quality of life of patients with advanced life-threatening conditions and their families, by advancing hospice and palliative care programs, education, research, and favorable policies around the world. www.hospicecare.com
National Coalition of Chronic Pain Providers and Professionals (NCCPPPP) is part of the U.S. Pain Foundation organization. They are a network of health providers, professionals, and organizations working on behalf of individuals with chronic pain, their families and their caregivers. www.nccppp.org
The National Headache Foundation exists to enhance the healthcare of headache sufferers. It is a source of help to sufferers’ families, physicians who treat headache sufferers, allied healthcare professionals and to the public. The NHF accomplishes its mission by providing educational and informational resources, supporting headache research and advocating for the understanding of headache as a legitimate neurobiological disease. www.headaches.org
The National Hospice and Palliative Care Organization (NHPCO) is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones. www.nhpco.org
The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services, is the nation’s medical research agency—making important medical discoveries that improve health and save lives. www.nih.gov
Painaustralia is a national not-for-profit body established to improve the treatment and management of pain in Australia. The organization was formed in February 2011 to facilitate implementation of the National Pain Strategy (NPS), which was developed by more than 200 delegates at the Pain Summit held at Parliament House, Canberra, in March 2010. www.painaustralia.org.au/
Pain Concern provides information and support for pain sufferers, those who care for them and about them. www.painconcern.org.uk
The Pain Relief Foundation is a UK charity which funds research into the causes and treatment of human chronic pain and is concerned with education of health professionals about pain management. www.painrelieffoundation.org.uk
Pain UK is an alliance of charities providing a voice for people in pain. They were founded in November 2011 and registered as a charity in January 2012. Since then, their membership base has grown rapidly and they now support charities dealing with all manner of painful conditions, from head to toe. https://painuk.org
The Peripheral Nerve Society is an international organization of physicians and scientists working together to develop and provide the best treatments for people who have peripheral nerve diseases. This goal is realized by cooperation – supporting research, training scientists and healthcare professionals, setting standards of care, creating new treatments, and facilitating clinical trials. www.pnsociety.com
Practical Pain Management is the property of Remedy Health Media, was founded in the year 2000 to provide in-depth clinical information on a variety of pain conditions and treatment approaches. Written and reviewed by pain experts and leaders in the field, our content helps readers navigate the evolving landscape of pain management, from the latest research in assessment to novel approaches in care to bring about the best long-term outcomes for individual patients. www.practicalpainmanagement.com/
Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) is an international 501 (c) 3 not-for-profit organization, based in Milford, Connecticut, formed in 1984. Our mission is to provide support, education, and hope to all affected by the pain and disability of CRPS/RSD, while we drive research to develop better treatments and a cure. www.rsds.org
The Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS) Association of America renamed Solve ME/CFS Initiative (Solve M.E.) is a non-profit disease organization that works to accelerate the discovery of safe and effective treatments, strives for an aggressive expansion of funding for research that will lead to a cure and seeks to engage the entire ME/CFS community in research, advocacy, and patient support. Solve M.E. is the foundational ME/CFS organization, steadily broadening strategic, collaborative relationships with patients, researchers, government officials and other ME organizations across the globe. www.solvecfs.org
Trigeminal Neuralgia Association (TNA), see the Facial Pain Association (FPA).
U.S. Pain Foundation’s mission is to empower, educate, connect, and advocate for people living with chronic conditions that cause pain. Dedicated to serving those who live with pain conditions and their care providers, U.S. Pain Foundation helps individuals find resources and inspiration. www.uspainfoundation.org
The Pain Connection is a division within the U.S. Pain Foundation and is the primary patient support group arm of the foundation. They have many on-line support groups and educational presentations. Group activities are conducted on the Zoom platform requiring only simple registration for admittance. It is the perfect solution for engagement with like-minded people sharing similar struggles and how to overcome them. www.painconnection.org
The Vulvar Pain Foundation was established in 1992 as a non-profit organization to end the isolation of women suffering from vulvar pain and related disorders (fibromyalgia, interstitial cystitis, irritable bowel). The Foundation’s purposes are to give reliable information, hope, safety, and success to sufferers and their families, to advance the standard of medical practice in treating vulvar pain syndrome, and to promote scientific research. www.vulvarpainfoundation.org
World Health Organization is the directing and coordinating authority for health within the United Nations system. It is responsible for providing leadership on global health matters, shaping the health research agenda, setting norms and standards, articulating evidence-based policy options, providing technical support to countries and monitoring and assessing health trends. www.who.int